As part of our Electronic Health Records (EHRs) project we carried out a large scale cross-sectional survey recruiting 5331 patients and members of the public from 16 primary and secondary care sites in West London (2011). In light of recent policy developments with the care.data GP extraction service we provide here a summary of key findings while preparing publications in peer-reviewed journals (we have already published the study protocol and some high level results):
Access preferences for different user groups
Patient and public preferences for access to EHRs by different user groups varied depending on whether records would include personal identifiers.