{"id":1149,"date":"2021-05-24T16:19:10","date_gmt":"2021-05-24T16:19:10","guid":{"rendered":"https:\/\/blogs.imperial.ac.uk\/perc\/?p=1149"},"modified":"2021-05-24T16:19:10","modified_gmt":"2021-05-24T16:19:10","slug":"involving-parents-to-inform-research-into-pre-school-wheeze","status":"publish","type":"post","link":"https:\/\/blogs.imperial.ac.uk\/perc\/2021\/05\/24\/involving-parents-to-inform-research-into-pre-school-wheeze\/","title":{"rendered":"Involving parents to inform research into pre-school wheeze"},"content":{"rendered":"
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In conversation with: Dr Hanna Creese<\/a>, Postdoctoral Research Associate working within the <\/strong>Child Health Unit,<\/a> <\/strong>Department of Primary Care and Public Health, Imperial College London\u00a0<\/strong><\/p>\n

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What is your research about?<\/strong><\/p>\n

Our research explores pre-school wheeze. A third of preschool-aged (1-5 years) children experience wheeze, making them cough and\/or have breathing difficulties. The number of preschool children in the United Kingdom (UK) who suffer or die from wheeze attacks is higher compared to that in other European countries. Recurrent wheeze can last throughout childhood and be an indication that the child will develop asthma. Recurrent wheeze is influenced by genetic vulnerability, respiratory infections, and air quality, but can be prevented with timely healthcare after the first wheeze attack. Although studies have reported risk factors for acute asthma attacks in school-aged children, there are no reports of risk factors for recurrent wheeze in the preschool population. The pattern of symptoms in this age group is very different to school-aged children. Early identification and intervention when children present with preschool wheeze has the potential to reduce the risk of recurrence, readmission to hospital, and deaths.<\/p>\n

In our research we aimed to investigate the role of preventive care and environmental exposures on recurrent wheeze in preschool-aged (1-5 years) children. To achieve this, we used anonymised patient data from a network of GP practices across the UK taken from the Clinical Practice Research Datalink<\/a>.<\/p>\n

While we had our own ideas, from a research\u00a0 perspective, of what questions we might like to explore using our dataset, we also wanted to ensure that our research was relevant and important to those affected by pre-school wheeze.<\/p>\n

We therefore aimed to put together a parents group who would help inform our research and the questions which we would explore in our dataset. We specifically wanted to hear about parental experiences of healthcare for recurrent wheeze in preschool-aged children before & during the Covid-19 pandemic and environmental exposures.<\/p>\n

Who did you involve and how did you find them?<\/strong><\/p>\n

We involved 12 parents of children aged 1-5 years with wheeze or asthma who were recruited from A&E, wheeze clinics & online support groups<\/p>\n

The purpose of the parent group was to help shape analysis of recurrent wheeze in preschool-aged children in routine data. We wanted to hear about parental experiences of healthcare for recurrent wheeze in preschool-aged children before & during the Covid-19 pandemic and environmental exposures. Parents had the opportunity to share their experiences of the health services that they had used for children\u2019s wheeze and hear from other parents.<\/p>\n

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How was the parent group involved in this research?<\/strong><\/p>\n

Parents had the opportunity to share their experiences of the health services that they had used for children\u2019s wheeze and hear from other parents. \u00a0Over four virtual sessions, our parent group discussed their children\u2019s healthcare journeys, changes to healthcare during the Covid-19 pandemic, and experiences of environmental triggers for recurrent preschool wheeze. Small group discussions were facilitated through virtual break-out rooms and any additional thoughts were added by parents to IdeaBoardz<\/a>, a team collaboration tool.<\/p>\n

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Outline of public involvement sessions held (below)
\n<\/em><\/p>\n\n\n\n\n\n\n\n
Session<\/strong><\/td>\nContent<\/strong><\/td>\n<\/tr>\n
Session 1:<\/strong><\/td>\n\n
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  • Welcome & introductions<\/li>\n
  • Aims & expectations<\/li>\n
  • Group discussion: experience of health services for wheeze<\/li>\n<\/ul>\n<\/td>\n<\/tr>\n
Session 2:<\/strong><\/td>\n\n
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  • Group discussion: experience of health services for wheeze continued<\/li>\n
  • Group discussion: changing services during the Covid-19 pandemic<\/li>\n<\/ul>\n<\/td>\n<\/tr>\n
Session 3:<\/strong><\/td>\n\n
    \n
  • Expert Q&A with Professor Sejal Saglani<\/li>\n<\/ul>\n<\/td>\n<\/tr>\n
Session 4:<\/strong><\/td>\n\n