{"id":1726,"date":"2024-08-28T13:23:47","date_gmt":"2024-08-28T13:23:47","guid":{"rendered":"https:\/\/blogs.imperial.ac.uk\/perc\/?p=1726"},"modified":"2024-08-28T13:23:47","modified_gmt":"2024-08-28T13:23:47","slug":"three-key-takeaways-from-our-participation-in-the-research-engagement-network-ren-community-roadshows","status":"publish","type":"post","link":"https:\/\/blogs.imperial.ac.uk\/perc\/2024\/08\/28\/three-key-takeaways-from-our-participation-in-the-research-engagement-network-ren-community-roadshows\/","title":{"rendered":"Three key takeaways from our participation in the Research Engagement Network (REN) community roadshows"},"content":{"rendered":"<div class=\"fcbkbttn_buttons_block\" id=\"fcbkbttn_left\"><div class=\"fcbkbttn_button\">\n\t\t\t\t\t<a href=\"https:\/\/www.facebook.com\/\" target=\"_blank\">\n\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/blogs.imperial.ac.uk\/perc\/wp-content\/plugins\/facebook-button-plugin\/images\/standard-facebook-ico.png\" alt=\"Fb-Button\" \/>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div><div class=\"fcbkbttn_like \"><fb:like href=\"https:\/\/blogs.imperial.ac.uk\/perc\/2024\/08\/28\/three-key-takeaways-from-our-participation-in-the-research-engagement-network-ren-community-roadshows\/\" action=\"like\" colorscheme=\"light\" layout=\"standard\"  width=\"225px\" size=\"small\"><\/fb:like><\/div><\/div><p><em>In this blog post, <a href=\"https:\/\/profiles.imperial.ac.uk\/k.bell\">Dr Kirsten Bell<\/a>, Senior Research Fellow in Anthropology in the Patient Experience Research Centre (PERC), Imperial College London, shares reflections from PERC&#8217;s participation in the Integrated Care System North West London funded Research Engagement Network roadshows.<\/em><\/p>\n<p>In early 2024, the Integrated Care System (ICS) North West London funded a collaboration led by NIHR Applied Research Collaboration (ARC) Northwest London and the Community Voluntary Sector Organisations in the boroughs of Ealing, Hounslow, Brent and Hillingdon to host a series of roadshows at their community centres. The goal of the roadshows was to reach out to people in community settings to talk about research, in the hopes of raising awareness of \u2013 and interest in \u2013 research amongst a more diverse public. The roadshows involved health checks and workshops, along with a variety of stalls highlighting local services and research studies and programmes.<\/p>\n<div class=\"jetpack-video-wrapper\"><span class=\"embed-youtube\" style=\"text-align:center; display: block;\"><iframe loading=\"lazy\" class=\"youtube-player\" width=\"640\" height=\"360\" src=\"https:\/\/www.youtube.com\/embed\/1EW9xA86XpA?version=3&#038;rel=1&#038;showsearch=0&#038;showinfo=1&#038;iv_load_policy=1&#038;fs=1&#038;hl=en-GB&#038;autohide=2&#038;wmode=transparent\" allowfullscreen=\"true\" style=\"border:0;\" sandbox=\"allow-scripts allow-same-origin allow-popups allow-presentation allow-popups-to-escape-sandbox\"><\/iframe><\/span><\/div>\n<p>Following the recent release of a video on the roadshows, we wanted to take the opportunity to reflect on what was brought home to us as a result of the 18 roadshows we participated in to support our work in bringing patients, the public and researchers together in collaborative partnerships.<\/p>\n<p>First, the roadshows were a valuable reminder that <strong>involving the public more actively in research means going out into communities, rather than expecting them to come to us<\/strong>. While attending the roadshows provided an opportunity for Imperial researchers to talk about their studies with the public, it often led to the realisation that what seemed straightforward to them was much less clear to roadshow attendees. One researcher later reflected on the need to <em>\u2018be very clear in my language and what I need from people when guiding a research project\u2019. <\/em>Another realised that<em> \u2018my idea is still very difficult to convey and the event confirmed this \u2013 so more work needed\u2019. <\/em><\/p>\n<p>For us in PERC, it also illustrated that the concept of \u2018patient and public involvement and engagement\u2019 (PPIE) is often difficult to convey to members of the public \u2013 especially the idea of including members of the public as research <em>advisors<\/em> as well as research participants Although some attendees could see the value of helping to shape research, the usefulness of this wasn\u2019t clear to everyone. For example, at one event, a PERC researcher spoke to a couple where the husband had recently had a heart attack who were immediately attracted to a brochure we had about a heart study \u2013 until, that is, they realised that the brochure was for public <em>partners<\/em> on the study, rather than <em>participants<\/em>. They were specifically interested in the latter based on the premise that it might improve his care.<\/p>\n<p>This highlights a second key takeaway from the roadshows: that while <strong>the lines between research and healthcare are clear to researchers themselves, the distinction is much less self-evident to the public than researchers assume<\/strong>. Many attendees didn\u2019t differentiate between Imperial College and Imperial College Healthcare NHS Trust, and wanted to talk about their experiences with the Trust \u2013 such as issues accessing appointments, etc. Others wanted advice on healthcare more generally. For example, one woman had signed up for a Boots health check and hadn\u2019t heard back from them, and wanted advice on this.<\/p>\n<p>As a PERC fellow later reflected,<\/p>\n<p>\u201c<em>As a clinician researcher this made me consider how difficult it is to establish boundaries or divides between clinical care and research, and whether actually the semantics of these divisions are relevant or useful to members of the public. It also made me wonder whether priority setting in research should focus more on some of these pragmatic details e.g., access to appointments\/ ability to be seen in a convenient location rather than the \u2018sexy\u2019 science that is often focused on at Imperial<\/em>.\u201d<\/p>\n<p>Some of the researchers who attended the roadshows with us were initially disconcerted by these interactions, as they had anticipated the opportunity to focus on their research studies and solicit potential interest in participating in them. However, these conversations highlighted our third key takeaway, which is that<strong> trust and relationship-building is critical to engaging communities in research, and that research is often the product of relationship-building rather than a starting point for it<\/strong>. As one researcher later reflected, while these community events don\u2019t necessarily yield immediate dividends for researchers themselves, they provide an opportunity for <em>\u2018understanding communities\u2019 attitudes to research\u2019<\/em>. Likewise, another researcher observed, \u2018<em>I learnt about people\u2019s attitudes towards research and about a lot of community events and people that are engaged with the community and their concerns and beliefs\u2019<\/em><em>.<\/em><\/p>\n<p>The roadshows highlighted the value of bringing researchers and communities into conversation, with everyone ideally learning from the interaction. We were able to learn more about the communities Imperial researchers want to engage with: how these communities are structured, the local organisations serving them, \u00a0what local health concerns and issues are, and local communities in Ealing, Hillingdon, Hounslow and Brent were able to learn more about the research being conducted at Imperial and beyond. To paraphrase the movie <em>Casablanca<\/em>, here\u2019s hoping that this is the beginning of some beautiful (research) friendships.<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>In this blog post, Dr Kirsten Bell, Senior Research Fellow in Anthropology in the Patient Experience Research Centre (PERC), Imperial College London, shares reflections from PERC&#8217;s participation in the Integrated Care System North West London funded Research Engagement Network roadshows. In early 2024, the Integrated Care System (ICS) North West London funded a collaboration led [&hellip;]<\/p>\n","protected":false},"author":1112,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":"","jetpack_post_was_ever_published":false},"categories":[297776,1],"tags":[311105,311101,269976,311107,311104,311106,311103,311099,311100,80222,3202,311108,81,311102],"series":[],"class_list":["post-1726","post","type-post","status-publish","format-standard","hentry","category-reflections","category-uncategorized","tag-brent","tag-community-engagement","tag-community-involvement","tag-community-voluntary-sector","tag-ealing","tag-hillingdon","tag-hounslow","tag-integrate-care-system","tag-north-west-london","tag-patient-and-public-involvement","tag-public-engagement","tag-relationship-building","tag-research","tag-roadshows"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Three key takeaways from our participation in the Research Engagement Network (REN) community roadshows - Patient Experience Research Centre<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Three key takeaways from our participation in the Research Engagement Network (REN) community roadshows - Patient Experience Research Centre\" \/>\n<meta property=\"og:description\" content=\"In this blog post, Dr Kirsten Bell, Senior Research Fellow in Anthropology in the Patient Experience Research Centre (PERC), Imperial College London, shares reflections from PERC&#8217;s participation in the Integrated Care System North West London funded Research Engagement Network roadshows. 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