{"id":359,"date":"2018-02-19T11:03:39","date_gmt":"2018-02-19T11:03:39","guid":{"rendered":"https:\/\/blogs.imperial.ac.uk\/ppi-in-research\/?p=359"},"modified":"2018-02-19T11:29:18","modified_gmt":"2018-02-19T11:29:18","slug":"ppi-in-the-nhs","status":"publish","type":"post","link":"https:\/\/blogs.imperial.ac.uk\/perc\/2018\/02\/19\/ppi-in-the-nhs\/","title":{"rendered":"What does PPI look like in the Imperial NHS Trust?"},"content":{"rendered":"
\n\t\t\t\t\t\n\t\t\t\t\t\t\"Fb-Button\"\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>
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Readers of this blog<\/a> will be familiar with Patient and Public Involvement in a research setting. But what does PPI look like within health care services? Here Imperial NHS Trust Lay Partners Mariam Mohammed and John Norton share their perspectives.\u00a0<\/em><\/p>\n

\"John<\/p>\n

<\/p>\n

In 2015, the Trust established their first strategic lay forum to work in partnership with senior staff to guide and oversee a strategic and systematic approach to patient and public involvement. The forum is made up of 12 lay partners \u2013 patients, carers and local residents \u2013 together with senior staff from the Trust and associated bodies. Mariam, 19, and John, 90, are two of those lay partners. Here they tell us how it\u2019s helping to create change and why people should get involved.<\/p>\n

How did you come to join the strategic lay forum?<\/strong><\/p>\n

Mariam<\/strong>: I got involved with the Trust a few years ago, when my younger sister got ill. She was unwell for a good while recovering from a stroke, and the staff at St Mary\u2019s provided her with great support. Her consultant, Dr Bob Klaber, suggested my father and I use our experience in hospital to help teach junior doctors about working with patients \u2013 we became their mock patients!<\/p>\n

I\u2019m at university training to become a therapeutic radiographer right now \u2013 so it was really interesting to give feedback to the junior doctors about how they communicate with patients and their families. It’s good to see that medicine is about so much more than clinical knowledge; it’s about how you listen and contribute to conversations, how you are with your patients and being a genuinely attentive and caring person.<\/p>\n

In March 2016, Dr Klaber suggested my dad and I attend a patient and public involvement event which was the beginning of the Trust developing its strategic patient involvement work. I found it interesting because, for once, I saw the NHS as more than just healthcare professionals making decisions that affected patients \u2013 patients could actually get involved. I really appreciate how the NHS is willing to take on new ideas and hear what we have to say.<\/p>\n

John<\/strong>: I\u2019ve been involved with the Trust for about five years, since before the strategic lay forum was established. I\u2019ve been volunteering on and off for quite a part of my life. I\u2019ve been a Samaritan, an advocate for older people and I\u2019ve volunteered with Age UK. Patients are involved in so many services throughout this organisation, but there wasn\u2019t always a central body to coordinate and cultivate the different activities. So in 2015, the Trust established a strategic lay forum to bring it all together and I became a member. That\u2019s also how I had the pleasure of meeting Mariam!<\/p>\n

What does the strategic lay forum do?<\/strong><\/p>\n

John<\/strong>: As a strategic group, we\u2019re responsible for working with the leadership of the Trust to research, coordinate and develop opportunities for patients to get involved in the organisation in different ways. Our job is to ensure the Trust delivers its patient and public involvement strategy. It\u2019s about making sure patients and the public can take an active role in operational and development projects at the Trust but also in shaping its longer term direction.<\/p>\n

Lay partners join project groups to provide external perspectives and views and I think of being a lay partner as like being a critical friend. We\u2019re there to support the Trust, but from time to time we say, \u201cAre you sure this is the way patients want or need something to be?\u201d As well as the 12 lay partners on the strategic lay forum, we currently have another 44 lay partner roles on project groups working on a wider range of issues, including improving waiting list management, the redevelopment of the St Mary’s site and developing a proper wayfinding and signage approach.<\/p>\n

For example, we regularly work with Trust staff to ensure policies, procedures and projects accommodate the unique needs of a variety of different people, from new patients to those who come to hospital often and know our hospitals well. We\u2019re also very mindful of the wide diversity of patients in terms of language, backgrounds and culture.<\/p>\n

About a year ago, we helped establish the patient communications reference group, which reviews Trust letters, leaflets and other communications with patients to ensure they are clear, accessible, and free of jargon. We put an offer out through our networks, website and social media and recruited 25 local people who now provide regular feedback and ideas on planned communications, primarily via email. The strategic lay forum also works with specific services at the Trust to support local approaches to increasing patient involvement \u2013 from improving feedback mechanisms, for example, to setting up patient groups that influence how services are delivered. It\u2019s still early days, but we\u2019re starting to become part of how the Trust operates.<\/p>\n

You both bring very different perspectives to the strategic lay forum.<\/strong><\/p>\n

John<\/strong>: Dare I say we’re on opposite ends of the age spectrum! I think breadth of age is important when it comes to patient and public involvement.<\/p>\n

Mariam<\/strong>: I come from a Somali-Muslim family. I can’t speak for the whole Somali-Muslim community here in London but, because our backgrounds, upbringing and culture are similar, I feel like I could possibly explain how they are feeling and maybe get more people from our community involved at the Trust. I don’t know what it is, but some can seem shy about voicing their opinion. There’s an attitude \u2013 just go to the doctor and take what they give you.<\/p>\n

John<\/strong>: I think that’s a fairly widespread attitude, and it’s something we need to break down wherever we can.<\/p>\n

You\u2019ve both been lay partners for a little while now \u2013 what have you learned, and what have you achieved?<\/strong><\/p>\n

John<\/strong>: I’ve learned many things. I’ve developed a belief that the world can’t be changed in one fell swoop. I think small steps, leading to a gradual transformation, is sensible. Doing what is practical, sensible and fundable. After all, a ladder is made up of small steps.<\/p>\n

Mariam<\/strong>: That’s very true! It\u2019s important to tackle challenges in small, achievable steps. I\u2019ve learned to be more confident. And I\u2019m hoping to be able to encourage more people from my community to share their views as patients.<\/p>\n

John<\/strong>: We\u2019ve brought the principles of co-creation to the Trust. Now there\u2019s an understanding that whatever you do, patients and the public need to be involved from the start to ensure they have a voice in every aspect of the Trust\u2019s work. These are cultural changes for an organisation and cultural changes don\u2019t happen overnight.<\/p>\n

What do you like about being lay partners \u2013 what keeps you coming back?<\/strong><\/p>\n

Mariam<\/strong>: Lots of things! I feel like I’m very well looked-after. I was a bit scared at first, because I’ve never been part of a group like this. I was scared of saying something silly. But the members of the strategic lay forum are very welcoming, and I\u2019ve become more confident speaking to everyone and contributing.<\/p>\n

I also had the opportunity to speak at the Institute of Healthcare Improvement conference that the Trust hosted in May 2017. I shared my story and learned from the experiences of people from all around the world who are involved in shaping healthcare in their communities.<\/p>\n

John<\/strong>: I think it’s the people, for me, and contributing to the important work our doctors, nurses and other healthcare professionals do in the NHS.<\/p>\n

But I have a selfish reason for doing this too, and I don’t think it does any harm. Certainly as one gets older, finding something to do is enormously valuable. For me, the satisfaction is in trying to achieve something. I feel a certain amount of pride in trying to make a difference.<\/p>\n

Finally, what would you say to someone who is thinking of getting involved at the Trust?<\/strong><\/p>\n

Mariam<\/strong>: Do it! There are so many different areas you can get involved in \u2013 the experience will be whatever you choose to make of it. If you\u2019ve got something to say, know that you will be supported by the Trust and all the other people who are willing to speak up for patients. Just do it!<\/p>\n

John<\/strong>: I’d say more or less the same! I’d ask: what sort of experiences have you had of the NHS? Have they been good experiences? If so, don’t you want others to share that? If not, don’t you want to play some part in helping to improve what is not so good? Because we can never expect everything to be right all the time. It will be good for your health, for your general well-being, and your feeling about the world. Why not?<\/p>\n

 <\/p>\n

Originally published on the Imperial NHS Trust blog as ‘Patients are the best judge of NHS services, and we must enlist their help<\/a>‘ (31 January 2018)
\n<\/em><\/p>\n

Being a lay partner is just one of the ways to get involved at the Trust. There are also opportunities to join one of our reference or project groups, volunteer, fundraise and attend our events. There are also lots of ways to feed in your views, raise concerns or suggest ideas including PALS; the Friends and Family Test; NHS Choices \u2013 or talk directly to your clinicians.<\/em><\/p>\n

Email\u00a0imperial.involvement@nhs.net<\/a>\u00a0to learn more about lay partnership or\u00a0join an involvement programme<\/a>.<\/em><\/p>\n

Want to learn more about Trust news and events?\u00a0Sign up for our bi-monthly membership newsletter<\/a>.<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"

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