{"id":647,"date":"2018-12-19T11:36:55","date_gmt":"2018-12-19T11:36:55","guid":{"rendered":"https:\/\/blogs.imperial.ac.uk\/perc\/?p=647"},"modified":"2018-12-19T11:41:38","modified_gmt":"2018-12-19T11:41:38","slug":"our-top-five-blogs-of-2018","status":"publish","type":"post","link":"https:\/\/blogs.imperial.ac.uk\/perc\/2018\/12\/19\/our-top-five-blogs-of-2018\/","title":{"rendered":"Our top five blogs of 2018"},"content":{"rendered":"
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By Professor Helen Ward<\/strong><\/span><\/p>\n

Director, Imperial Patient Experience Research Centre<\/strong><\/span><\/p>\n

Imperial Patient Experience Research Centre<\/a>, aka PERC, started blogging about 18 months ago with this Welcome to our Blog<\/a> post. The blog was set up to\u00a0\u201cshare the latest learnings and news from the PPI community, points of views from the team on the advances and issues of public involvement, case studies of good involvement practice to inspire new ideas, and a whole host of other top tips and personal pointers\u201d.<\/span><\/p>\n

Since then we\u2019ve published 25 blogs, ranging from case studies of good practice and opinion pieces, through to notices about events, training, and top tips for applicants for our grants scheme. You can find them all here<\/a>, listed by category and by date. You can now subscribe to the blog to be notified as pieces are published \u2013 on the right hand-side of the home page<\/a>.<\/span><\/p>\n

So, what have you liked? Here are our top 5 blog posts from 2018,\u00a0ranked by average number of views per month. After all, with\u00a0some\u00a0having only been posted last month, it doesn’t seem fair\u00a0just comparing totals (as some other bloggers have done).\u00a0Sorry, I can\u2019t shake off that scientific rigour, even at Christmas. Let the countdown commence…<\/span><\/p>\n

\"Patient<\/strong><\/span><\/p>\n

1.<\/strong><\/span> The winner, by some margin, is The PPI Caf\u00e9 \u2013 open for ideas<\/a><\/strong>. This was published in May 2018 and has had an average of 125 hits every month since, reaching over 300 in July. The PPI Caf\u00e9 seemed to strike a chord as a new way of involving people in research. Described as \u201ca hybrid between a science caf\u00e9 and a more typical PPI workshop\u201d, it was designed by five Imperial research centres in partnership with members of the public. It had its first outing at the Imperial Festival in May, and has since been presented, discussed and used widely. We even took it to Singapore where it proved popular with visitors to a local market, and we are planning a series of caf\u00e9s in the new year to open up conversations with people living and working near Imperial\u2019s new White City Campus.<\/span><\/p>\n

2.<\/span><\/strong> In second place is a more recent post, \u201cSeldom Heard Voices\u201d: should we do patient and public involvement (PPI) differently?<\/a><\/strong>, which hit 139 reads in just three weeks after it was first published in October. Dr Mel Hughes from Bournemouth University described the work of their new\u00a0Centre for Seldom Heard Voices<\/a>, which aims to engage with marginalised and often silenced voices through user-led or co-created approaches.<\/span><\/p>\n

The next three were all case studies<\/a> which shared stories about different ways researchers can work with patients and the public to share ideas, identify research priorities and discuss opportunities.<\/span><\/p>\n

3.<\/span><\/strong> Dr Candice Roufosse, Senior Clinical Lecturer at the\u00a0Centre for Inflammatory Diseases, explains\u00a0how winning one of our PPI Grants helped improve her research. In An interactive PPIE workshop on kidney transplant rejection<\/a><\/strong>, she describes the half day event which attracted 40 patients and others affected by transplant. The workshop has helped in the development and launch of a UK multicentre clinical trial for the treatment of antibody-mediated rejection in kidney transplantation, and has had average of nearly 100 reads a month so far.<\/span><\/p>\n

4.<\/strong><\/span> Involving patients and the public in a group to inform the whole research process is an excellent way of building strong relationships and can lead to meaningful public involvement. In The ALGeBRA Steering Group for breast cancer research<\/a> <\/strong>blog, Will Kendall talked to\u00a0Camarie Welgemoed, a clinical research fellow in radiotherapy, about her experience and what she has learned about the value of working with the public, lessons that were hopefully shared by 185 blog readers in the first month!<\/span><\/p>\n

5.<\/span> <\/strong>Last but not least, The Inflammatory Bowel Disease Patient Involvement in Research Day<\/a><\/strong> was a national event bringing together 80 patients and 30 researchers, and the blog attracted 167 readers in one month. The organisers are planning to run another event next year and are looking for collaborators around the world.<\/span><\/p>\n

In 2019 we are planning more informal opinion pieces, as well as articles on public involvement in Asia, a service users\u2019 perspective on being involved in research, and a case study of public involvement in a clinical trial. If you have an idea for a story get in touch at ppi@imperial.ac.uk<\/a><\/span><\/p>\n

Happy new year!<\/span><\/p>\n

You can follow us on twitter @Imperial_PERC\u00a0<\/a>and subscribe to our blog on the right-hand side here<\/a>.<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"

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