A quick recap
Last month, we launched our patient engagement survey on inequalities in sickle cell care, discussed our collaborative efforts and the recent Marmot report on racism and health inequalities.
1. Survey
We would like to express our deepest thanks to those who participated and shared our survey. Your incredible response and tremendous effort in disseminating the survey have been invaluable. Our NHS RHO funded project is coming to an end, so we are working hard to write it all up in a report and in scientific publications for wide dissemination. The winner of the virtual voucher will be contacted shortly. Findings from the survey and other parts of our work on inequalities in sickle cell will be published in spring 2025.
2. Imperial Sickle Cell Alliance Meeting
On Friday 6th December, Rutendo attended the Imperial Sickle Cell Alliance meeting were discussions with stakeholders across institutions, organisations and patient groups focused on health, advocacy, education, research and innovation projects. The Alliance is a fairly recent initiative, led by Dr Steven Okoli and Professor Julie Makani, with the aim to unite organizations and campaigns under a single umbrella to have a stronger, more unified voice in advocating for sickle cell patients.
3. The future of Sickle Cell Research survey
Genomics England, the Sickle Cell Society and the James Lind Alliance are conducting a survey to gather insights from people with lived experience of sickle cell, family members, carriers, caregivers, and healthcare professionals. The aim is to identify the most important research areas for sickle cell and how genomics can contribute to improving patient care and outcomes. Have your say for a chance to win a £150 Amazon voucher!
4. Thank you!
As we wrap up for the year, we thank you for following, supporting and engaging with our blog. We wish you a wonderful festive break and happy new year!