{"id":15,"date":"2024-01-30T20:36:58","date_gmt":"2024-01-30T20:36:58","guid":{"rendered":"https:\/\/blogs.imperial.ac.uk\/uk-sickle\/?p=15"},"modified":"2024-02-23T09:39:39","modified_gmt":"2024-02-23T09:39:39","slug":"january-post-welcome-introductions","status":"publish","type":"post","link":"https:\/\/blogs.imperial.ac.uk\/uk-sickle\/2024\/01\/30\/january-post-welcome-introductions\/","title":{"rendered":"January post &#8211; Welcome &amp; introductions"},"content":{"rendered":"<p><span data-contrast=\"auto\">Welcome on this new blog which aims to share updates on the <a href=\"https:\/\/www.nhsrho.org\/research\/sickle-cell-comparative-research-to-inform-policy\/\">Sickle Cell Comparative Research to Inform Policy<\/a> project, funded by the <a href=\"https:\/\/www.nhsrho.org\/\">NHS Race &amp; Health Observatory<\/a>, at Imperial College London.<\/span><\/p>\n<p><span data-contrast=\"auto\">We started our new project exploring inequalities in the care of people with sickle cell disease this month. Inequalities in sickle cell disease have been recently highlighted in the <a href=\"https:\/\/www.parallelparliament.co.uk\/APPG\/sickle-cell-and-thalassaemia\">Sickle Cell and Thalassaemia All-Party Parliamentary Group<\/a> inquiry into avoidable sickle cell deaths, titled <\/span><a href=\"https:\/\/www.sicklecellsociety.org\/wp-content\/uploads\/2021\/11\/No-Ones-Listening-Final.pdf\"><span data-contrast=\"none\">\u2018No-one\u2019s listening\u2019<\/span><\/a><span data-contrast=\"auto\">. <\/span><\/p>\n<p><span data-contrast=\"auto\">The NHS Race and Health Observatory recently published the\u00a0 <\/span><a href=\"https:\/\/www.nhsrho.org\/news\/digital-care-plans-can-transform-nhs-services-for-sickle-cell-patients\/\"><span data-contrast=\"none\">\u2018Sickle cell digital discovery report: designing better acute painful sickle cell care\u2019<\/span><\/a><span data-contrast=\"auto\"> report which outlined the poor experience that emergency hospital care that sickle cell disease patients experience from first-hand accounts and described key recommendations to improve care of sickle cell disease patients.<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">The aim of our study is to better document and understand the inequalities in the care of sickle cell disease patients across England by comparing their care with other conditions considered similar such as cystic fibrosis and haemophilia.\u00a0<\/span><\/p>\n<p><b><span data-contrast=\"auto\">Meet the team<\/span><\/b><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><strong><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"235\" class=\"alignnone size-large wp-image-22\" src=\"http:\/\/blogs.imperial.ac.uk\/uk-sickle\/files\/2024\/01\/Team-1024x235.png\" alt=\"\" \/><\/strong><\/p>\n<p>(from left to right)<\/p>\n<ul>\n<li><a href=\"https:\/\/www.imperial.ac.uk\/people\/f.piel\"><strong>Dr Fred Piel<\/strong> <\/a>&#8211; Senior Lecturer in Spatial Epidemiology and global expert of sickle cell disease, lead of the project | X\/Twitter: <a href=\"https:\/\/twitter.com\/FredPiel\">@FredPiel<\/a><\/li>\n<li><a href=\"https:\/\/www.imperial.ac.uk\/people\/r.muzambi\"><strong>Dr Rutendo Muzambi<\/strong><\/a> &#8211; Research associated in Health Inequalities and epidemiologist &#8211; researcher on this project| X\/Twitter: <a href=\"https:\/\/twitter.com\/Rutendo_rm\">@Rutendo_rm<\/a><\/li>\n<li><strong>Dr Dan Dexter<\/strong> &#8211; Specialist Haematology Registrar &#8211; haematologist providing clinical input on this project.<\/li>\n<li><a href=\"https:\/\/www.imperial.ac.uk\/people\/g.sathyamoorthy\"><strong>Ganesh Sathyamoorthy<\/strong> <\/a>&#8211; Deputy Director of the Ethnicity &amp; Health Unit and trustee of the UK Sickle Cell Society.<\/li>\n<li><a href=\"https:\/\/www.imperial.ac.uk\/people\/robert.bottle\"><strong>Professor Alex Bottle<\/strong> <\/a>&#8211; Professor of Medical Statistics &#8211; collaborator from the Dr Foster Unit<\/li>\n<\/ul>\n<p><b><span data-contrast=\"auto\">What work will we be doing for the coming months?<\/span><\/b><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<ul>\n<li><span data-contrast=\"auto\">Reviewing current evidence on inequalities in sickle cell care comparing with cystic fibrosis<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/li>\n<li><span data-contrast=\"auto\">Perform data analyses assessing in inequalities in accident and emergency care such as hospital waiting times using data from hospitals across England<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/li>\n<li><span data-contrast=\"auto\">Conduct workshops and surveys to understand sickle cell care patient&#8217;s experience and healthcare professionals working with people with sickle cell disease<\/span><\/li>\n<\/ul>\n<p>So, watch this space for future monthly updates!<\/p>\n<p>See you next month.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Welcome on this new blog which aims to share updates on the Sickle Cell Comparative Research to Inform Policy project, funded by the NHS Race &amp; Health Observatory, at Imperial College London. We started our new project exploring inequalities in the care of people with sickle cell disease this month. Inequalities in sickle cell disease [&hellip;]<\/p>\n","protected":false},"author":1777,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-15","post","type-post","status-publish","format-standard","hentry","category-uncategorised"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>January post - Welcome &amp; introductions - Sickle Cell Comparative Research to Inform Policy Project<\/title>\n<meta name=\"description\" content=\"Welcome and introduction to the project!\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/blogs.imperial.ac.uk\/uk-sickle\/2024\/01\/30\/january-post-welcome-introductions\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"January post - Welcome &amp; 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