I have just given a talk about our work at the BNOS conference in Liverpool, and thought I should write something about the work we have been doing.
The GlioCova project has data on the patient demographics, tumour demographics, and the treatments received (chemotherapy, radiotherapy, and neurosurgery) of 50,000+ adult patients diagnosed with a primary brain tumour between 2013-2018. We specifically have information on the inpatient and outpatient NHS admissions in HES tables of these patients from 3 months before diagnosis (the end of 2012) and follow-up data after diagnosis (up to the end of 2019). Using this rich and detailed patient-level dataset as well as software publicly available from the NHS (HRG4+ Reference Costs Grouper), we provided comprehensive up-to-date estimations of the secondary care costs of cranial glioblastoma patients. My work was the first attempt to estimate the treatment and care costs of the commonest primary malignant brain tumour in a multi-year whole population cohort in England.