Feedback Archives - Patient Experience Research Centre

Having an Impact with PPIE in Paediatric Intensive Care Research

20 December 2024

In conversation with: Emma Alexander, Clinical Research Fellow in Paediatric Intensive Care at St Mary’s Hospital in London

As a doctor who works in children’s intensive care, I have always been interested in research, especially in research that matters to parents and young children. However, until this year I had never formally taken part in patient and public involvement and engagement (PPIE) activities, but I have learned a great deal from these experiences and am now an enthusiastic advocate!

In this blog post I would like to reflect a little on what I have done, and what I have learned – with all of it being thanks to the amazing members of the public who have taken the time to share their experiences and help me on my research journey.

Lighting the way with fluorescence guided surgery Patient and Public Involvement in our PhDs

Naomi Asantewa-Sechereh

14 July 2023

In conversation with: Maria Leiloglou, Research Associate in the Hamlyn Centre, Imperial College London; and Martha Kedrzycki, Academic Surgical Registrar within the Imperial College Healthcare NHS Trust.

What is GLOW? GLOW stands for ‘Guiding Light Optimizing Wide local excisions’. It describes the fluorescence imaging empowering surgeons to provide accurate breast-conserving surgery to their patients.

1 in 7 women will be diagnosed with breast cancer during their lifetime. Most of these women will have early-stage breast cancer, and as such their treatment will be breast-conserving surgery. In breast-conserving surgery only the tumour and a small amount of normal breast tissue (margin) surrounding the tumour is removed, allowing women to keep as much of the remaining normal breast tissue as possible.

Developing an alternative to blood tests for health investigation through a microneedle biosensor device

Halle Johnson

10 October 2022

This entry is part 3 of 11 in the series People's Research Cafe at the Great Exhibition Road Festival 2022

This blog is part of a series showcasing the People’s Research Cafe which took place on the 18th and 19th June 2022 in South Kensington, London as part of the Great Exhibition Road Festival.

What is a People’s Research Café?

The People’s Research Cafe is a café with a twist. Visitors are welcomed to sit down at a table co-hosted by an Imperial College researcher and a public contributor whose role is to help the conversation flow freely. Over a free hot drink, visitors find out about the researcher’s project and will be asked for their opinions on it.

‘What makes you feel alive?’ A patient’s question inspires art and science.

Philippa Pristera

14 July 2020

CRUK Senior Research Nurse, Kelly Gleason, shares how one patient’s vision continues to inspire her, and influence how we involve and engage the public in healthcare and research design at Imperial.

Sunday evening, November 14th 2014, we stood in the dark on Exhibition Road, staring through the large glass windows into the main entrance of Imperial College London. There stood twenty-four portraits, assembled as six pillars, ready to tell their story. A woman in a black dress sitting on an aluminium step stool wearing a carnival headdress, a man in leathers on a motorcycle, a toddler in her dad’s arms gesturing a story with her hands, these were the people keeping Rina Dave alive.

Completing the Feedback Loop: how to improve your Patient and Public Involvement.

Will Kendall

9 May 2018

Elspeth Mathie discusses her recent study on the importance of giving feedback to the public in PPI.

Are members of the public wasting their time?

It is widely accepted that Patient and Public Involvement is beneficial for health research. However, imagine spending time giving your opinion and never getting any feedback. Some members of the public ask “am I wasting my time”? Many PPI contributors (lay members, service users, patients, members of the public) say that they contribute to the design of research studies but do not hear if their comments get to the researcher, are useful or make any difference to the research.