Evolving patient involvement: How local support and online resources helped foster patient involvement and improve the robustness of our study results
This entry is part [part not set] of 0 in the series Case studies
In conversation with: Emma Lidington, PROFILES Trial Manager
Working within/Team name: PROFILES Team, Royal Marsden NHS Foundation Trust, The NIHR Biomedical Research Centre (BRC) at The Royal Marsden NHS Foundation Trust and The Institute of Cancer Research
The value of lived experience
Experts have recommended that academics should actively involve patients and the public in every phase of research to meaningfully incorporate the voice of those with lived experience. However, achieving this goal can seem daunting, particularly as an early career researcher. In our project, the level of patient involvement evolved over the course of the study, with the Public Involvement Research Hub and local funding from my institution as huge drivers of that change.