Tag: Patient & Public Involvement

Understanding the impact of digital technologies on patient safety

This entry is part 2 of 2 in the series People's Research Cafe at the Great Exhibition Road Festival 2022

This blog is part of a series showcasing the People’s Research Cafe which took place on the 18th and 19th June 2022 in South Kensington, London as part of the Great Exhbition Road Festival.

What is a People’s Research Café?

The People’s Research Cafe is a café with a twist. Visitors are welcomed to sit down at a table co-hosted by an Imperial College researcher and a public contributor whose role is to help the conversation flow freely. Over a free hot drink, visitors find out about the researcher’s project and will be asked for their opinions on it.

User-centred design in diabetes technology development

In conversation with: Dr Parizad Avari, ST7 Registrar and Honorary Clinical Lecturer, working with Professor Nick Oliver in the Department of Metabolism, Digestion and Reproduction, Imperial College, London

What is your research project about and what stage are you at?

We are aiming to improve the lives of people living with Type 1 diabetes, an autoimmune condition which requires lifelong insulin therapy. The Horizon 2020 PEPPER (Patient Empowerment through Predictive PERsonalised decision support) project is a personalised decision support system to support self-management. The PEPPER app was designed for people with type 1 diabetes to manage their condition by providing personalised advice about insulin dosage and carbohydrate intake through artificial intelligence.

“How patients at different stages of the steroid weaning process helped to shape and design my research”

This entry is part [part not set] of 1 in the series Case studies

In conversation with: Dr Katharine Lazarus, Diabetes and Endocrine Registrar and Clinical Research Fellow, working within the Section of Endocrinology and Investigative Medicine, Department of Metabolism, Digestion and Reproduction, Imperial College London

What is your research project about and what stage are you at?

Steroid tablets, such as prednisolone are widely used to treat conditions such as asthma and arthritis. One in six people take steroids at any one time and one in 50 adults (approximately 1 million in the UK) take steroids for a prolonged period. 

Involving women to help shape a project exploring pregnancy care following weight-loss surgery

This entry is part [part not set] of 1 in the series Case studies

In conversation with: Dr Saleem Ansari, Registrar in Metabolic Medicine and Chemical Pathology, working within the Department of Metabolism, Digestion and Reproduction, imperial College London

What is your research project about and what stage are you at?

My research aims to answer the question ‘What is the preferred weight-loss operation for women with obesity who are of child-bearing age.’

There are two main weight loss-operations, the ‘gastric bypass ‘and sleeve gastrectomy’. The gastric bypass operation is associated with complications during pregnancy such as early delivery and small babies, but whether these complications occur after sleeve gastrectomy is currently unknown.

Involving parents and carers in research about children’s healthcare experiences during covid-19

This entry is part [part not set] of 1 in the series Case studies

In conversation with: Dr Kimberley Foley , a Postdoctoral Research Associate working within the Child Health Unit, Department of Primary Care and Public Health. Imperial College London

What did you do?

We invited parents and carers to a 2-hour online forum to share their experiences of accessing healthcare services for their children during the Covid-19 lockdown. Our research uses anonymised patient data collected from GP practices from the Clinical Practice Research Datalink in the UK. Our work is specifically looking at the number of times children and young people contacted their GP (in March to June 2020) compared to previous years.

Involving women to design and develop research into early-onset pre-eclampsia

This entry is part [part not set] of 1 in the series Case studies

In conversation with Olive Adams, Patient and Public Involvement (PPI) Midwife working with Professor Christoph Lees and the research team based at the Centre for fetal care at Imperial Healthcare Trust and Women’s Health Research Centre at Imperial College London.

How would you describe your role as a Patient and Public Involvement (PPI) Midwife? 

My role as PPI midwife was specifically developed to ensure high quality public involvement activity was undertaken across all of Professor Lees upcoming projects within the Women’s Health Research Centre, including enabling involvement at the very  earliest stage of each study.

Designing follow-up care for stroke with those who know it best

This entry is part [part not set] of 1 in the series Case studies

In conversation with: Jennifer Crow, Clinical Specialist Occupational Therapist in Stroke who is undertaking a NIHR Pre-doctoral Clinical Academic Fellowship programme working within: Therapies/Stroke at Charing Cross Hospital, London

Jenny’s pre-doctoral fellowship is a partnership fellowship funded by the Stroke Association and the National Institute for Health Research.

What did you do? 

I ran my first virtual Patient Public Involvement Group via zoom with 6 attendees. I had previously been involved in public engagement activities in the form of patient stories and feedback but I had not attempted public involvement.