Community involvement Archives - Patient Experience Research Centre

HIV Co-Production Showcase: Sharing learnings from a participatory research project (Part 2)

5 August 2022

This entry is part 2 of 2 in the series HIV Co-Production

On Wednesday 6 July 2022, 25 stakeholders met at Lift, Islington (a community venue) to reflect, create and share ideas together as a group about co-producing HIV research using the example of a recent participatory project exploring the impact of COVID-19 on people living with HIV in the UK

The showcase event was co-designed to be interactive and participatory in nature (after all, we wanted to showcase how valuable these approaches can be to research!). You can find out more about how we co-designed the day in our previous blog.

HIV Co-Production Showcase: Sharing learnings from a participatory research project (Part 1)

Halle Johnson

6 July 2022

This entry is part 1 of 2 in the series HIV Co-Production

Over the last 18 months we have been working in partnership as a group of researchers and people living with HIV (two peer researchers and three advisory group members to undertake a co-produced peer research qualitative study exploring the experiences of COVID-19 among people living with HIV. This work is a collaboration between the Patient Experience Research Centre at Imperial College London and Positively UK.

As part of this participatory study, co-researchers undertook training on research ethics, the fundamental aspects of qualitative research, how to conduct and analyse interviews online and emotional wellbeing/safeguarding while undertaking research.

Why has nobody asked us?! Our journey so far to co-produce research.

Maria Piggin

24 January 2022

This entry is part [part not set] of 1 in the series Case studies

In conversation with Dr Helen Skirrow, National Institute Health Research Clinical Doctoral Research Fellow, Child Health Unit, Department of Primary Care and Public Health, School of Public Health, Imperial College London. and Lena Choudary-Salter, Founder and CEO of The Mosaic Community Trust

What is “Why has nobody asked us?” about?

“Why has nobody asked us?” aims to explore families’ experiences and perspectives of childhood vaccinations and is a co-production research project between Dr Helen Skirrow and The Mosaic Community Trust. In the UK, children living in poorer areas of big cities like London who belong to ethnic minorities or who do not speak English at home are less likely to be vaccinated however in previous research the voices of these families have often been missing.

Pandemics, infodemics and the impact on people like you (and me)

Philippa Pristera

11 March 2020

By Professor Helen Ward, Patient Experience Research Centre, Abdul Latif Jameel Institute for Disease and Emergency Analytics, School of Public Health, Imperial College London.

“Of all the gin joints in all the towns … of all the one-horse towns … why did this virus have to come to mine?”

The words of my friend Paul who is living in an Italian town under lockdown because of the novel coronavirus epidemic. His frustration is palpable as his plans for travel, work and social life were put on hold for at least two weeks (and subsequently extended for another three). But he reasons, “despite the fact that it’s not a killer disease, we can’t all go around with pneumonia.