Author: Anna Lawrence-Jones

Involving community members to help people attend their hospital appointments

Attending hospital appointments is essential for patients to access the medical care they need to maintain and improve their health. Across North West London, individuals living in the most deprived areas and from ethnic minority groups face a variety of barriers to attending outpatient appointments at Imperial College Healthcare NHS Trust. The focus of this collaborative project between IGHI’s Helix Centre and the Trust was to understand why people miss their appointments and to co-design solutions with community members that help them to attend.

Going to the first outpatient appointment can help prevent a chain reaction of health inequity. By attending diagnostic appointments (such as scans), individuals help to ensure timely diagnoses and interventions, which can lead to better health outcomes and more effective treatment and management of their conditions.

A young person’s experience of being involved in the Networked Data Lab

The Institute of Global Health Innovation partners with Imperial College Health Partners (ICHP) and Imperial College London to lead the North West London Networked Data Lab (NDL).

The Networked Data Lab (NDL), funded by The Health Foundation, is a community of data professionals looking to solve the UK’s most pressing health care challenges since COVID-19. The North West London NDL is one of five NDLs around the UK that carries out data analysis on various topics based on local priorities, which were determined through community engagement and by the Health Foundation. Health care data is often fragmented, making reliable analysis difficult, but in North West London we have access to a depersonalised linked data set, via Discover-NOW, covering a diverse population of over 2.5 million.

How seldom heard groups are helping us shape our research priorities – learnings so far

Last summer, the Institute of Global Health Innovation, Imperial College Health Partners and Imperial College London were successful in being named as one of the five Network Data Labs (NDL) across the UK, funded by the Health Foundation.

This is an extremely exciting opportunity for our partnership. We have the opportunity to work with our local community in North West London to identify research priorities for health and care since COVID-19, and translate those findings into practice – helping to reduce inequalities.

In North West London we are also very fortunate to have access to a linked data set, known as Discover.

Reflecting on our co-produced study with young people with past mental health difficulties

“Please indicate whether your research will include patient and public involvement.” Ticks box.

Rapidly fading are the days when involving patients and the public in research is merely a tokenistic gesture, in favour of meaningful involvement and co-production.

Patient and public involvement (PPI) is research that’s carried out with and by patients, carers and public members, rather than to, for or about them. Co-production takes this one step further; here, researchers work with these individuals throughout the entire project – from start to finish.

Our Co-production Journey: From Sandpits to Bird Boxes

By Anna Lawrence-Jones (co-written with Jean Straus).

This article originally appeared on the UCL Public Engagement blog and has been reposted with permission. Visit the blog to read more about the UCL Centre for Co-Production in Health Research. 

In my former job at Cancer Research UK, I organised Sandpit Innovation Workshops that brought together researchers, healthcare professionals and innovative thinkers to come up with novel research ideas to help solve a health challenge. Normally a three-day event, sandpits are a way to generate research ideas – which are inevitably more innovative and daring in this spontaneous environment – and get them funded quickly.