Category: Patient and Public Involvement and Engagement (PPIE)

Supporting the safe and meaningful involvement of women experiencing homelessness in research

IGHI recently received funding from the National Institute of Health and Care Research (NIHR) for an 18-month project in partnership with the Marylebone Project and Central London Healthcare which focuses on supporting the safe and meaningful involvement of women experiencing homelessness in research.

People experiencing homelessness have shorter life expectancies, poorer physical and mental health, and less access to healthcare than the general population. For women experiencing homelessness, the average age of death is 43 – two years younger than men and nearly half the life expectancy of women in the general population. Many homeless women are survivors of abuse, and more research is needed to provide specialised, female-led support for this group in safe, trauma-informed spaces.

Involving community members to help people attend their hospital appointments

Attending hospital appointments is essential for patients to access the medical care they need to maintain and improve their health. Across North West London, individuals living in the most deprived areas and from ethnic minority groups face a variety of barriers to attending outpatient appointments at Imperial College Healthcare NHS Trust. The focus of this collaborative project between IGHI’s Helix Centre and the Trust was to understand why people miss their appointments and to co-design solutions with community members that help them to attend.

Going to the first outpatient appointment can help prevent a chain reaction of health inequity. By attending diagnostic appointments (such as scans), individuals help to ensure timely diagnoses and interventions, which can lead to better health outcomes and more effective treatment and management of their conditions.

Waiting well

We know people are waiting a long time to receive treatment. We also know people living in less advantaged areas experience health inequalities. Imperial College Healthcare NHS Trust and the Helix Centre carried out a project, funded by the North West London Integrated Care Board, to understand the challenges faced by people living in less advantaged areas while waiting for orthopaedic treatment and to design tailored support initiatives that might help people to live well while waiting. To do this, we interviewed 7 patients to understand their experience of waiting for an orthopaedic procedure. Then we held a workshop with 8 patients at the Bush Theatre to design support ideas in response to the key insights from the interviews.

Julia Anderson Careers Event 2024: Inspiring sixth formers with career insights and opportunities to transform global health

In February we hosted the Julia Anderson Training Programme (JATP) Careers Event 2024 at Institute of Global Health Innovation (IGHI), a fantastic evening for sixth form students to learn more about our Julia Anderson programme and the IGHI, and get inspired for their future careers. 

Sixth formers from different London state-funded schools travelled to The Invention Rooms, at Imperial College London’s White City Campus, to participate in the event. They got the chance to learn more about the opportunities at IGHI, hear some of our staff members’ career journeys, as well as interact with some of the fantastic workstreams we work on to improve people’s health.

Keeping OnTrack with stroke rehabilitation

The Helix Centre, part of the Institute of Global Health Innovation, is helping stroke patients to manage their recovery and increase their independence, with a wearable tool that provides support for the rehabilitation of their arm and hand.

OnTrack Rehab is a platform that combines tracking of arm movements through a smart watch with personalised virtual coaching and dedicated clinical support. The system allows stroke patients to convert every-day activities into productive rehabilitation, and stroke therapists to monitor and help guide the patients’ progress. The development of the platform has been led by a multidisciplinary team at Helix including Gianpaolo Fusari (Project Lead) and Clare McCrudden (Engagement Lead).

Fightin’ Thru – Mental Health is worth fighting for

For many young men, opening up about mental health can feel daunting, with many feeling restricted by barriers such as stigma or fear. Those who identify as Black or minority ethnic are also more likely to experience racism, poverty and poorer educational outcomes than those who identify as White. These young people are also less likely to seek help through traditional mental health services.

To tackle this, the Institute of Global Health Innovation (IGHI) teamed up with The Mind Map, a Liverpool-based mental health organisation, and Golden Gloves Amateur Boxing Club in Toxteth, Liverpool, to form Fightin’ Thru. Fightin’ Thru is a boxing-themed campaign using innovative, creative and non-traditional mediums to raise awareness and encourage opening up about mental health in minoritised young men.

A young person’s experience of being involved in the Networked Data Lab

The Institute of Global Health Innovation partners with Imperial College Health Partners (ICHP) and Imperial College London to lead the North West London Networked Data Lab (NDL).

The Networked Data Lab (NDL), funded by The Health Foundation, is a community of data professionals looking to solve the UK’s most pressing health care challenges since COVID-19. The North West London NDL is one of five NDLs around the UK that carries out data analysis on various topics based on local priorities, which were determined through community engagement and by the Health Foundation. Health care data is often fragmented, making reliable analysis difficult, but in North West London we have access to a depersonalised linked data set, via Discover-NOW, covering a diverse population of over 2.5 million.

Reducing isolation – using co-creation to get people living with dementia online

Our Helix Centre works to translate research into products that improve health outcomes. In this blog Alice Gregory, Designer at the Helix Centre, describes the creation of a ‘Digital Befriending Kit’ and toolkit as part of the Digital Inclusion Innovation Programme run by the Greater London Authority and the London Office for Technology and Innovation (LOTI). This blog was originally posted online by LOTI.