Tag: Patient and Public Involvement

Why did nobody ask us?! Reflections and findings from co-produced research into children’s vaccine uptake.

In conversation with Dr Helen Skirrow, Lena Choudary-Salter and Habiba Haque

A recap on our research project

Not enough children in the local area around Church Street, Westminster, London where the Mosaic Community Trust is based get their routine vaccines.  We therefore worked together on our project that Lena Choudary-Salter (Mosaic’s CEO) named ‘Why did nobody ask us?!’ to reflect that local parents’ views who live in an area of low vaccine uptake had not previously been listened to.  We have written about our partnership working before. Children missing out on their routine vaccines is a problem not just in Church Street but in lots of areas of London and other urban areas of the UK, which are poorer and have more ethnically diverse populations.

Public involvement in prematurity research at Imperial Women’s Health Research Centre

This entry is part [part not set] of 0 in the series Case studiesThis entry is part 3 of 5 in the series PPI Awards: Round 4 Reports

In conversation with: Lynne Sykes, Clinical Lecturer; Rachel Akers, Senior Research Midwife; and Malko Adan, Senior Research Midwife

Working within: Prematurity Research, Women’s Health Research Centre at Imperial Institute of Reproductive & Developmental Biology

What did you do?

We held face-to-face meetings with patients who took part in our preterm research project meetings to garner acceptability and opinions for new research techniques. We chose this method because it allowed our patients to share their experiences with others and catch up with the research team, who they saw for a large amount of time during their pregnancy.

Involving women in the design of maternal cardiovascular research

This entry is part 2 of 5 in the series PPI Awards: Round 4 ReportsThis entry is part [part not set] of 0 in the series Case studies

In conversation with: Olive Adams, Research Midwife

Working within: Centre for Fetal Care (NIHR Imperial BRC Theme: Maternity Cardiovascular)

What did you do?

Our research department, the Centre for Fetal Care, undertakes studies on maternal cardiovascular health and other conditions in pregnancy at Imperial and with European collaborators.

We formed a group of women who were either affected by conditions addressed in our research or who were in the pre-conception period (the weeks or months when a woman or couple decides to have a child).

Case Study #10: An interactive PPIE workshop on kidney transplant rejection

This entry is part [part not set] of 0 in the series Case studies

We are delighted to announce the NIHR Imperial BRC PPI Grant Scheme is now open until Friday 19 October 2018, 5pm. The purpose of this grant scheme is to support motivated researchers and their teams to undertake meaningful and impactful public and patient involvement that will shape their research and enhance the translation of biomedical research from bench to bedside. As this is our fourth round of funding, we spoke with Dr Candice Roufosse, Senior Clinical Lecturer at the Centre for Inflammatory Diseases about how winning a PPI Grant helped improve their research.

Completing the Feedback Loop: how to improve your Patient and Public Involvement.

Elspeth Mathie discusses her recent study on the importance of giving feedback to the public in PPI.

 

Are members of the public wasting their time?

It is widely accepted that Patient and Public Involvement is beneficial for health research. However, imagine spending time giving your opinion and never getting any feedback. Some members of the public ask “am I wasting my time”? Many PPI contributors (lay members, service users, patients, members of the public) say that they contribute to the design of research studies but do not hear if their comments get to the researcher, are useful or make any difference to the research.