Tag: research

How public involvement changed our research question exploring experiences of people with Long Covid

In conversation with: Emily Cooper, Research Associate, Adam Lound, Research Physiotherapist, Patient Experience Research Centre, Imperial College London

What is your research project about and what stage are you at?

This research project is one part of the REal time Assessment of Community Transmission – Long Covid (REACT-LC) study. The project is a qualitative interview study exploring the different experiences of people with long lasting symptoms after having Covid-19. This study builds on our earlier pilot project, which showed how people experienced different symptoms and whether or not they described this as being ‘Long Covid’. The pilot study highlighted the value of recruiting participants from outside of online support groups, to help better understand the range of different people living with long lasting symptoms.

Dying Matters Week: Ensuring you and your loved ones are #InAGoodPlace at the end of life

This week we are highlighting an important cause – Dying Matters Awareness Week. Dying Matters is a campaign run by Hospice UK that aims to get us talking more openly about death, dying and bereavement. The focus of this year’s awareness week is on what it means to be #InAGoodPlace when we die. To be in a good place at the end life involves having your physical, emotional, financial and spiritual needs met and getting the right care and support. We can only achieve this if we get people thinking about, and talking through, their wishes for end of life care.