Workshops Archives - Patient Experience Research Centre

Lighting the way with fluorescence guided surgery Patient and Public Involvement in our PhDs

14 July 2023

In conversation with: Maria Leiloglou, Research Associate in the Hamlyn Centre, Imperial College London; and Martha Kedrzycki, Academic Surgical Registrar within the Imperial College Healthcare NHS Trust.

What is GLOW? GLOW stands for ‘Guiding Light Optimizing Wide local excisions’. It describes the fluorescence imaging empowering surgeons to provide accurate breast-conserving surgery to their patients.

1 in 7 women will be diagnosed with breast cancer during their lifetime. Most of these women will have early-stage breast cancer, and as such their treatment will be breast-conserving surgery. In breast-conserving surgery only the tumour and a small amount of normal breast tissue (margin) surrounding the tumour is removed, allowing women to keep as much of the remaining normal breast tissue as possible.

What’s New and Promising in Neuropathic Pain Research? Involving Patients in Research Co-Design

Philippa Pristera

3 February 2020

This entry is part [part not set] of 0 in the series Case studiesThis entry is part 5 of 5 in the series PPI Awards: Round 4 Reports

In conversation with: Donna Kennedy, Clinical Specialist Hand Therapy (Imperial College Healthcare NHS Trust) and Postdoctoral Research Fellow (NIHR Imperial Biomedical Research Centre). Working in collaboration with Prof. Andrew Rice, Dr Harriet Kemp and Dr Whitney Scott within the Pain Research Group led by Prof. Andrew Rice.

What did you do?

The Pain Research Group investigates neuropathic pain in the context of infectious diseases, diabetes and nerve trauma.

Lessons from CRISH: How to run a co-production training course in six steps

Will Kendall

5 July 2019

Maria Piggin from the NIHR Imperial BRC Patient Experience Research Centre shares her experiences of running a co-production training course.

Case study #16: Frontiers in Cystinuria Research – Learning from patient experience to inform precision medicine research

Will Kendall

24 May 2019

This entry is part [part not set] of 0 in the series Case studies

Dr Toby Athersuch, Lecturer, Phenome Centre

‘Frontiers in Cystinuria Research’ was an event held last October at Imperial College London. It involved people affected by cystinuria in discussions with expert medical professionals and academic researchers active in this area. The aim of the event was to capture some of these rich patient experiences to inform future precision medicine research, while simultaneously providing a forum for patients to share their insight. We feel that these types of event are important enablers of patient-directed research development, particularly relevant in the context of rare metabolic diseases, where patient input and advocacy is often underrepresented.

Calls open for 2018 Engage Conference

Will Kendall

14 May 2018

Calls are now open for contributions to the 2018 Engage Conference. We hear from Nathan Green and Denise Sime who presented at last year’s conference. They discuss their experience of sharing their learnings on LoL-Lab, a co-created comedy event between Imperial researchers and the public. If you would like to apply to be part of this year’s conference, get in touch with us at ppi@imperial.ac.uk for support with an application.

What is the Engage conference?

Nathan: The National Coordinating Centre for Public Engagement (NCCPE) annual conference, Engage 2017, was held over two days in December in Bristol. We saw presenting at this workshop as a fantastic opportunity to share lessons from our own public engagement experience.

Case study #1: LOL-lab

Philippa Pristera

26 October 2017

This entry is part [part not set] of 0 in the series Case studies

In conversation with: Nathan Green, Research Fellow Working within: HPRU (Modelling Methodology)

What did you do?

‘LOL-lab’ was a collaboration between Imperial scientists and the public. We created and hosted a public ‘science comedy’ event, which was developed jointly with members of the public. LOL-lab was designed to celebrate and share scientific achievements.

We aimed to connect researchers (i.e. biologists, epidemiologists, and mathematicians) with the public through light-hearted, plain-speaking 10-minute talks at an informal stand-up comedy evening event hosted by a professional comedian.