Patient and Public Involvement Archives - Page 2 of 2 - Patient Experience Research Centre

Completing the Feedback Loop: how to improve your Patient and Public Involvement.

9 May 2018

Elspeth Mathie discusses her recent study on the importance of giving feedback to the public in PPI.

Are members of the public wasting their time?

It is widely accepted that Patient and Public Involvement is beneficial for health research. However, imagine spending time giving your opinion and never getting any feedback. Some members of the public ask “am I wasting my time”? Many PPI contributors (lay members, service users, patients, members of the public) say that they contribute to the design of research studies but do not hear if their comments get to the researcher, are useful or make any difference to the research.

What can an engineering PhD student learn from PPI?

Will Kendall

2 May 2018

Biomedical Engineer Shruti Turner reflects on the recent CRISH (Co-creating Innovative Solutions in Health) course and explains that engineers could learn a lot from PPI.

Case study #8: Hackathons as a method for co-developing novel research tools

Will Kendall

10 April 2018

This entry is part [part not set] of 0 in the series Case studies

In conversation with: Thibaut Jombart, Lecturer in Genetic Analysis

Working within: HPRU (Modelling Methodology)

What did you do?

I organised a hackathon (i.e. a coding workshop) called ‘Hackout 3’, which was funded by the Medical Research Council (MRC) and Health Protection Research Unit (HPRU). The event brought together epidemiologists, stakeholders from public health institutions, and members of the public (professional computer programmers) to develop new statistical tools for disease outbreak analysis and response.

Using social media to engage the public in your research

Will Kendall

5 April 2018

In this guest blog, Imperial‘s Cathy Thomas offers advice on how to use social media to engage (and involve!) the public in your research. What have your experiences with using social media for engagement been? Share your experiences in the comments.

Why bother with social media?

There are over one billion active users on Facebook and over 100 million monthly Instagram users – which means that if you’re looking to connect with members of the public, it’s worth considering how social media and other digital tools could support or enhance your engagement activity.

The useful thing about social media is that it’s a discursive medium that encourages sharing and participation, so rather than simply using it as a tool to promote what you’re doing, there will be ways in which it can support two-way engagement.

What does PPI look like in the Imperial NHS Trust?

Will Kendall

19 February 2018

Readers of this blog will be familiar with Patient and Public Involvement in a research setting. But what does PPI look like within health care services? Here Imperial NHS Trust Lay Partners Mariam Mohammed and John Norton share their perspectives.

Case study #5: Establishing a public panel in research

Philippa Pristera

2 February 2018

This entry is part [part not set] of 0 in the series Case studies

In conversation with: Aime Boakye, Junior Study Coordinator and PPI/E Lead Working within: HPRU in Respiratory Infections

What did you do?

It was a primary aim of our NIHR Health Protection Research Unit (HPRU) in Respiratory Infections to seek meaningful patient and public input in our three research areas: Influenza, Tuberculosis and Other Acute Respiratory Infections. Therefore, we appointed two patient representatives (for Flu and Tuberculosis) who were invited to our key strategic and public meetings.

Additional to that, in January 2017, we set up a panel of patients and members of the public who either had experience of respiratory conditions or were interested in our three research areas.