Dissemination Archives - Patient Experience Research Centre

Why did nobody ask us?! Reflections and findings from co-produced research into children’s vaccine uptake.

4 September 2024

In conversation with Dr Helen Skirrow, Lena Choudary-Salter and Habiba Haque

A recap on our research project

Not enough children in the local area around Church Street, Westminster, London where the Mosaic Community Trust is based get their routine vaccines. We therefore worked together on our project that Lena Choudary-Salter (Mosaic’s CEO) named ‘Why did nobody ask us?!’ to reflect that local parents’ views who live in an area of low vaccine uptake had not previously been listened to. We have written about our partnership working before. Children missing out on their routine vaccines is a problem not just in Church Street but in lots of areas of London and other urban areas of the UK, which are poorer and have more ethnically diverse populations.

How public involvement changed our research question exploring experiences of people with Long Covid

Naomi Asantewa-Sechereh

13 February 2024

In conversation with: Emily Cooper, Research Associate, Adam Lound, Research Physiotherapist, Patient Experience Research Centre, Imperial College London

What is your research project about and what stage are you at?

This research project is one part of the REal time Assessment of Community Transmission – Long Covid (REACT-LC) study. The project is a qualitative interview study exploring the different experiences of people with long lasting symptoms after having Covid-19. This study builds on our earlier pilot project, which showed how people experienced different symptoms and whether or not they described this as being ‘Long Covid’. The pilot study highlighted the value of recruiting participants from outside of online support groups, to help better understand the range of different people living with long lasting symptoms.

HIV Co-Production Showcase: Sharing learnings from a participatory research project (Part 2)

Halle Johnson

5 August 2022

This entry is part 2 of 2 in the series HIV Co-Production

On Wednesday 6 July 2022, 25 stakeholders met at Lift, Islington (a community venue) to reflect, create and share ideas together as a group about co-producing HIV research using the example of a recent participatory project exploring the impact of COVID-19 on people living with HIV in the UK

The showcase event was co-designed to be interactive and participatory in nature (after all, we wanted to showcase how valuable these approaches can be to research!). You can find out more about how we co-designed the day in our previous blog.

HIV Co-Production Showcase: Sharing learnings from a participatory research project (Part 1)

Halle Johnson

6 July 2022

This entry is part 1 of 2 in the series HIV Co-Production

Over the last 18 months we have been working in partnership as a group of researchers and people living with HIV (two peer researchers and three advisory group members to undertake a co-produced peer research qualitative study exploring the experiences of COVID-19 among people living with HIV. This work is a collaboration between the Patient Experience Research Centre at Imperial College London and Positively UK.

As part of this participatory study, co-researchers undertook training on research ethics, the fundamental aspects of qualitative research, how to conduct and analyse interviews online and emotional wellbeing/safeguarding while undertaking research.

Reflections on developing and running a Science Café at the Cancer Research UK Imperial Centre

Katherine Baker

10 January 2022

Kelly Gleason, Lead Nurse at the Cancer Research UK Imperial Centre shares her reflections on starting and running a Science Café; a safe space to bring together researchers, clinicians and members of the public to learn and share knowledge about cancer research

How it all started?

In 2010 I attended the International Association of Clinical Research Conference in the USA. That year, the keynote speaker, Mr Charles Sabine, gave a very powerful and emotive talk about Huntington’s disease and the importance of research in this area.

Mr Sabine had lost his father to Huntington’s disease; his brother was in the advanced stages of the illness and he himself had chosen to have genetic testing to find that he too carried the gene for Huntington’s.

Case study #11: The ALGeBRA Steering Group for breast cancer research

Will Kendall

24 September 2018

This entry is part [part not set] of 0 in the series Case studies

In conversation with: Camarie Welgemoed, Honorary Clinical Research Fellow and part-time PhD, currently working as Breast Specialist Superintendent in radiotherapy.

Working within: Radiotherapy at Charing Cross hospital, doing a PhD in the Department of Surgery and Cancer.

Calls open for 2018 Engage Conference

Will Kendall

14 May 2018

Calls are now open for contributions to the 2018 Engage Conference. We hear from Nathan Green and Denise Sime who presented at last year’s conference. They discuss their experience of sharing their learnings on LoL-Lab, a co-created comedy event between Imperial researchers and the public. If you would like to apply to be part of this year’s conference, get in touch with us at ppi@imperial.ac.uk for support with an application.

What is the Engage conference?

Nathan: The National Coordinating Centre for Public Engagement (NCCPE) annual conference, Engage 2017, was held over two days in December in Bristol. We saw presenting at this workshop as a fantastic opportunity to share lessons from our own public engagement experience.

What can an engineering PhD student learn from PPI?

Will Kendall

2 May 2018

Biomedical Engineer Shruti Turner reflects on the recent CRISH (Co-creating Innovative Solutions in Health) course and explains that engineers could learn a lot from PPI.

Using social media to engage the public in your research

Will Kendall

5 April 2018

In this guest blog, Imperial‘s Cathy Thomas offers advice on how to use social media to engage (and involve!) the public in your research. What have your experiences with using social media for engagement been? Share your experiences in the comments.

Why bother with social media?

There are over one billion active users on Facebook and over 100 million monthly Instagram users – which means that if you’re looking to connect with members of the public, it’s worth considering how social media and other digital tools could support or enhance your engagement activity.

The useful thing about social media is that it’s a discursive medium that encourages sharing and participation, so rather than simply using it as a tool to promote what you’re doing, there will be ways in which it can support two-way engagement.

Take your research to QPR Football Club

Will Kendall

14 February 2018

Find out how Imperial researchers can engage the public in their work at QPR’s annual Community Day.