Tag: Public involvement

“I sound like Darth Vader and I cough up fur balls” How people living with Airway Stenosis have informed my research career so far.

In conversation with: Dr Gemma Clunie, Senior Clinical Academic Speech and Language Therapist working within: Sackler MSK Lab, Surgery & Cancer  and PERC Fellow (2024)

What is your research project about and what stage are you at?

Airway stenosis (AS) is a narrowing of the windpipe between throat and lungs. People with AS experience a range of distressing symptoms such as shortness of breath, wheeziness, a hoarse voice and swallowing difficulties. Many patients have complicated surgery to widen their throat and improve their breathing. The picture included below shows one of my PhD research participants immediately after this surgery.

How public involvement changed our research question exploring experiences of people with Long Covid

In conversation with: Emily Cooper, Research Associate, Adam Lound, Research Physiotherapist, Patient Experience Research Centre, Imperial College London

What is your research project about and what stage are you at?

This research project is one part of the REal time Assessment of Community Transmission – Long Covid (REACT-LC) study. The project is a qualitative interview study exploring the different experiences of people with long lasting symptoms after having Covid-19. This study builds on our earlier pilot project, which showed how people experienced different symptoms and whether or not they described this as being ‘Long Covid’. The pilot study highlighted the value of recruiting participants from outside of online support groups, to help better understand the range of different people living with long lasting symptoms.

Celebrating public involvement in NIHR Imperial BRC supported research

On Monday 20 November 2023, 77 members of the public and NIHR Imperial Biomedical Research Centre researchers and staff gathered to celebrate public involvement in research and network.

As part of the Imperial Imperial Biomedical Research Centre (BRC)‘s Public Involvement Engagement and Participation Strategy (2022 to 2027) almost 80 Community Partners have been recruited to support the NIHR Imperial BRC through steering groups linked to the Imperial BRC’s 14 Research Themes. Community Partners are people who live, work, study, or receive healthcare in North-West London, and who are passionate about sharing their valuable lived experience to help improve research and the health of the North-West London community.

Supporting schools to participate in research on children’s physical activity and wellbeing

In conversation with: Dr Bina Ram, Postdoctoral Research Associate working within the Child Health Unit, Department of Primary Care and Public Health, Imperial College London

What did you do?

I am leading the iMprOVE study which is examining physical activity of Year 1 children (aged 5-6 years) in Greater London primary schools. The main aim of the study is to compare differences in children’s physical activity across schools that do and do not implement a school based active mile intervention called (which involves children running or jogging for 15 minutes at least three times a week during the school day), whilst also examining its effect on children’s mental health and educational performance.

Developing an implant to prevent breast cancer-related lymphoedema

In conversation with: James E Moore Jr., Principal Investigator; Alain Vella, Research Engineer; and Arushri Swarup, Research Associate, from the Moore Research Group in the Department of Bioengineering, Imperial College London

What is your research project about and what stage are you at?

We have developed an implant to prevent the onset of breast cancer-related lymphoedema (BCRL). BCRL is an under-represented condition that can occur following lymph node removal for the treatment of breast cancer. When lymph nodes are removed, lymphatic vessels (small vessels that transport fluid out of tissues) are damaged. In approximately 20% of patients this can lead to fluid build-up resulting in a swollen, heavy arm negatively impacting patients’ physical and mental health.