Tag: Policy

News worth celebrating for the cystic fibrosis community

Professor Jane Davies reflects on the positive news for those affected by cystic fibrosis on both sides of the Atlantic – access to Orkambi on the NHS and FDA Approval of ‘triple combination’ in the US.

Last week marked a milestone for people living with cystic fibrosis (CF) in the UK after NHS England announced that new drugs – Orkambi and Symkevi – will be made available on the NHS after securing a deal with the drug manufacturers, Vertex. After four years of community and patient organisation campaigns, I am delighted with this outcome which will be transformative for young people with CF.

There are over 10,000 people in the UK and over 100,000 worldwide estimated to be living with cystic fibrosis (CF). The condition is caused by a faulty gene encoding for a cell surface ion channel called Cystic Fibrosis Transmembrane Conductance Regulator (CFTR). Ion channels are integral for regulating salt and water transport across mucosal surfaces, particularly in the lungs for defence against infections and in the digestive system. People with CF have a shorter life expectancy than healthy people and a hugely burdensome treatment regime just to keep as well as possible. (more…)

What is environmental inequality and why should we care?

Charlotte Roscoe highlights the problem of environmental inequality and explores how potential solutions such as urban green spaces may help to close the gap.

Whether it’s standing on picket lines with Mind the Pay Gap signs, whether it’s the rallying cry of Black Lives Matter, or surging child poverty across the UK: one thing inequality probably doesn’t mean to you, is city planning. Yet over 80% of the UK population live in urban areas, and the built environment is unequally impacting our health and wellbeing.

Not all urban neighbourhoods were built equal

Urban neighbourhoods designed in the past few decades of vehicle priority tend to be the most damaging to health. Car parks and roads have swallowed up our public spaces, and despite government strategies to reduce vehicle emissions via charging schemes, vehicles continue to dominate our streets.

Perhaps you’ve read headlines such as: “Traffic noise revealed as new urban killer”, or, “Each car in London costs NHS and society £8,000 due to air pollution”. These shocking news stories feature robust scientific evidence from the MRC Centre for Environment and Health, that both traffic noise and air pollution are linked to ill health, and even death.

Newsflash – traffic is bad for us! (more…)

A smoke-free country: how will we get there?

The Government recently announced plans to create a smoke-free society by 2030 – Dr Nick Hopkinson outlines some of the steps towards achieving this ambition.

Tobacco smoking remains a huge public health issue. Although population smoking rates continue to fall – now down to 14.4% of adults – smoking is still responsible for around 100,000 deaths per year in the UK, and for around half the difference in life expectancy between rich and poor. Smoking rates are high in areas of deprivation, in people with mental health problems and among people who identify as LGBT.

The Government’s recent green paper, Advancing our health: prevention in the 2020’s, although in many areas light on detail, funding, delivery and ambition, does set out some important markers on smoking and some potentially interesting developments around funding tobacco control. (more…)